I am married to the same man for 43 years now. Seems incredible that we have even lived that long. He’s always been a bit of a beast with a short temper and has always been very exciteable over the dumbest things. But I digress.
Five years ago, the Beast had a stroke. A brainstem stroke. Doctors and nurses both told the family that they had never seen anyone that survived one with their wits intact. They usually ended up a vegetable or dead. Plain and simple, that was it. They did NOT know the Beast very well (laugh).
The very same personality traits he possesses that led to the stroke are the ones that kept him alive and kicking. Some folks are *gentled* by such a devestating illness. Not the Beast. If anything, he got worse. It had left him paralyzed on his left side and he couldn’t *find* his arm so was constantly asking people to find it for him. He was smoking 3 packs of cigarettes a day at least and was a total addict. He was always screaming at me to take him outside and give him a cigarette. He got ugly about it when I refused. First of all, he was hooked up to all these machines keeping track of his blood pressure, oxygen levels and who knows what else? He would swear at me and tell me that if it had been ME in there, I would have found a way to get out and smoke. That might be true for anything except a stroke or heart attack. I think I would have been more concerned about getting better.
I won’t go into all the details of how he made life hell for the nurses. He even tried to *escape* one day and ended up at the foot of his bed, in the wrong direction and had to just lay there until rescued by the nurses. Everyone knew who HE was, trust me on that. He was notorious.
I had a 12 year old granddaughter at home at the time. She had been with him when he had the stroke and was totally traumatized by the experience. We had custody of her so it wasn’t like I could send her home to her mother and only worry about the Beast. He wanted me there with him 24/7 and I kept telling him it was impossible. First of all, the hospital wouldn’t allow it. Second of all, I still had a large home and child to try to give a certain semblance of a normal life. As it was, thank goodness for our neighbors. They either had Krys at their homes until I got home to make dinner or would look in on her for me.
I learned how to do my grocery shopping on the fly and did laundry late at night. At the time, I was used to being up late because that was when my family and I would talk and play games together on the computer. My other kids could *talk* to me online, too, since they all had jobs and couldn’t be there all the time. One son and his family lived in Tennessee and had taken a hair-raising trip as soon as he heard about his father and come down to check out his condition first-hand.
The Beast ended up in the hospital for a week. They wanted to put him directly into rehab but he fought it and refused. HE felt he could do rehab with home workers. In truth, he wanted OUT of the hospital so he could have a cigarette. What he didn’t realize was that I had some friends come over and sanatize all the ductwork in the house and had forbidden any smoking in the house. I made everyone go out on the back patio or the pool patio to smoke so there wouldn’t be that *fragrance* to tempt him when he came home. I had also stopped smoking for HIS sake.
I was furious when he came home via his cousin (he told me not to come get him, that his cousin was going to bring him home and….duh….I can be so dumb at times for not thinking it through) and all I could smell on him was smoke.
I had a hissy fit and told him to go ahead and kill himself. He obviously didn’t care about himself so why should I?
His little sojourn at home lasted all of three days. I had to call the doctor and make arrangements for inpatient rehab for him because we were just not set up for someone who was totally paralyzed on one side and he hated my having to take him to the bathroom and even wipe his butt. He didn’t want to work with the health care workers so I put my foot down and he actually agreed he needed to go in. It took another day but I packed up his clothes for a week or so (I could wash his clothes as needed) and the ambulance came to transport him. He was in rehab for almost three months. After that, he did outpatient so I just had to drive him there and pick him up later in the day.
His sense of humor, always a bit weird, got him through the next nine months of recovery. Even the other patients started to look forward to his entering the common room where the patients gathered to do some of the different exercises required. He singlehandedly kept their spirits up and caused a lot of laughter which was good to hear. His attitude gentled due to realizing he was not as bad off as many of them. It was a humbling experience for me but I can’t really say for him. Let’s just say that he was not quite as *beastly* to me and mine as he had been at the beginning of all this.
I found out I was a natural caregiver but it was NOT easy. If it hadn’t been for some online help sites and talking with others going through the same thing, I am not sure I could have kept my sanity. Nothing was easy. I did shopping late at night (Thank God for Walmart and their 24 hour stores) and did clothes washing, folding and hanging up. I hired a cleaning lady to help me out with the huge house we owned at the time. I only had her come every other week but she did an amazing job. She knew us all and I am sure didn’t charge me what she could have.
We were lucky. The Beast and I owned our own company and we had good technical and office help. The company kept running so we had weekly paychecks to tide us over. I spoke with many people online that were in dire straits because they didn’t have the savings or insurance in place that we did. I thanked God daily for such large favors as our having made the right decisions in some areas.
It’s five years later and the Beast has some residual effects of his first stroke (Oh, he also had a milder one six months later but it only set him back about a month’s worth of progress). His gait is strange and his left foot keeps wanting to turn in. His muscles play hell with him and tighten up after only 15 minutes or so of activity.
He’s still stubborn and will go lay down for 10 minutes or so and then he’s up and around again. I think he gets scared that if he stays down too long, he might never get up again. It’s humbling for him, I think.
Anyway, my one trepidation about our move to Alabama is that we will be together pretty much 24/7 again. I have lots of hobbies and things I can do besides clean house. This house is smaller than our Florida home and takes less time to totally clean up. HE, however, has no real hobby other than his fruit trees and that’s not going to do me any good come next winter. He can’t seem to start any project that doesn’t involve interrupting me at whatever *I* am doing to *give him a hand for a minute*. **Sigh**
Pray for me.